Debate contribution: Alfie Pentony: Availability of NICE-approved Drug

Debate contribution by Mr Mike Nesbitt on .

MLA
Mr Mike Nesbitt
Party at the time
Ulster Unionist Party
Date
18 February 2025
Type
Debate contribution
Business
Oral Answers to Questions
Heading
Alfie Pentony: Availability of NICE-approved Drug
Assembly identifier
Official Report component 4806419

Text

I assure the Member that I am on that case. It is a matter of coincidence, I believe, that one of the very first events that I went to in this Building after being elected for the first time in 2011 was organised by my predecessor as Minister of Health, Robin Swann. It was a constituency event about Duchenne, so it has been on my radar for a long time. I am now aware that the new drug is becoming available, and I do not want to see it restricted from young men. This young man will lose the power to walk, I understand, in relatively short order if we do not do something.

114 words. Text as published by the Northern Ireland Assembly.

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