Debate contribution: Alfie Pentony: Availability of NICE-approved Drug

Debate contribution by Mr Colin McGrath on 18 February 2025.

MLA: Mr Colin McGrath
Party at the time: Social Democratic and Labour Party
Date: 18 February 2025
Type: Debate contribution
Business: Oral Answers to Questions
Heading: Alfie Pentony: Availability of NICE-approved Drug
Assembly identifier: Official Report component 4806417

Text

I reiterate the point about moving "at pace", because timing is critical. If the people involved do not get access to the drug before the start of muscle wastage, the drug is of no use to them. The word that Alfie used today about not getting access to the drug was "cruel". That is the word of a 12-year-old to Members of this Assembly. It is cruel, and I hope that we can overcome and ensure that he, along with others, is able to get access to those drugs.

89 words. Text as published by the Northern Ireland Assembly.

Part of an exchange

This follow-up belongs to: Topical question AQT 1041/22-27.

Assessment

Not analysed

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