Motion or amendment: Myalgic Encephalomyelitis (ME) Patient Support
Motion or amendment by Miss Nuala McAllister on .
- MLA
- Miss Nuala McAllister
- Party at the time
- Alliance Party
- Date
- 16 May 2025
- Type
- Motion or amendment
- Business
- Motion · Private Members' Motion
- Heading
- Myalgic Encephalomyelitis (ME) Patient Support
- Assembly identifier
- Document 439854
Read the official Assembly record Open Data source
Text
Myalgic Encephalomyelitis (ME) Patient Support
That this Assembly acknowledges the significant ongoing challenges faced by people with myalgic encephalomyelitis (ME) to overcome both the day-to-day uncertainties of living with the condition and the stigma arising from the fact that it was, until recently, unrecognised even within much of the medical profession; endorses the work of charities such as Hope4ME & Fibro and ME Support Northern Ireland in supporting people living with the condition and informing the public about it; expresses ongoing frustration at the absence of adequate support and services for people in Northern Ireland living with ME, including those whose symptoms arose after they tested positive for COVID-19; recognises the importance of including ME as a mandatory topic in undergraduate education and training for healthcare professionals; supports awareness campaigns to inform the public and further remove the stigma associated with the condition; and calls on the Minister of Health to work with the Health and Social Care Trusts to appoint a regional Clinical Lead for ME as a matter of urgency to ensure that care and support is aligned by National Institute for Health and Care Excellence Guidelines.
189 words. Text as published by the Northern Ireland Assembly.
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